Bence souffre d’une maladie génétique rare. Les médecins lui ont donné un à deux ans à vivre

Les symptômes de l’adrénoleucodystrophie (ALD) ont commencé à se manifester lorsque Bence avait 7 ans. Les médecins lui donnaient un à deux ans à vivre. Huit ans ont passé et sa dégénérescence s’est arrêtée. Il commence même à se sentir mieux par endroits.

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